My first cervical screening at 25 was quite a negative experience due to the nurse being the opposite of reassuring and giving me the wrong information. After that first test I simply didn't go back again. Years passed, I worked overseas, moved house a lot and just always seemed to be able to avoid thinking about another screening.
Finally at 35, in 2010 I went for a routine check up and my nurse mentioned that I was overdue a cervical screening. Because I felt so at ease with this nurse I agreed. My screening results came back with severe dyskariosis (severe cell changes), and further tests revealed I had cervical cancer. Being told you have cancer is devastating but I had (and have) such a wonderful medical team that really did explain everything in simple terms and offered me great support. The cancer was at an early stage so I was extremely fortunate to have to go through just three operations without chemotherapy or radiotherapy.
Going through treatment was hard but I actually struggled more to cope with my feelings and emotions after the surgery. I hadn't prepared myself for the long journey of tests, biopsies and the worry that the cancer would come back. As a strong independent woman, this was something I really struggled with and no one close to me could empathise or understand me.
I found Jo's Cervical Cancer Trust after googling ‘cervical cancer support’. Initially, during my diagnosis and treatment I didn't seek out support. After the operations I started to use their online forum and eventually posted how I was feeling. Almost immediately I had women sharing their experiences, advice and support for me, I couldn't believe it! This small recognition made me feel so much better. I then joined the charity's local support group rather tentatively thinking it would be a bit of heavy therapy but again, was surprised and delighted to find a group of like-minded, wonderful women who had all gone through various treatments and had found the support of each other. The meetings included wonderful sessions on various elements of living through cervical cancer which helped me come to terms with the long lasting impact of the diagnosis. But more than that the group gave me a chance to have a coffee and a gossip.
The impact of a cancer diagnosis is far reaching both personally and professionally but I feel extremely lucky that I have a fantastic network of friends and colleagues and a loving and supporting family. It's incredibly tough for my parents and indeed my husband. In fact, I'd say this was probably the worst part of the whole experience as they felt so helpless. I have a wonderful job at the Barbican Centre in London and I was fully supported during my treatment. My boss was wonderful and the occupational health met with me regularly to ensure work worries didn’t hinder my recovery. I worked from home (in fact, I worked right up until I got wheeled into theatre…the wonders of the iphone!) after the operations and had no pressure to return to work until I was 100%.
It is 3 years since my diagnosis and first operation. I have 6 monthly colposcopy appointments, which include screening and occasional biopsies to check that the cells are not changing. I have had mild changes and there is a possibility that more surgery will be necessary in the future but I’m in excellent hands and have great support through Jo’s Cervical Cancer Trust, my family and friends. I keep fit and healthy and live life to the full.
I was incredibly lucky that they caught the cancer at an early stage and had I delayed the screening much longer it may have been a different story. It meant that I didn’t have to suffer prolonged and more invasive treatment. But to think that I could’ve quite easily prevented all of this is still extremely frustrating. For many women the thought of a cervical screening is worrying but for 5 minutes of discomfort or embarrassment it is worth it in order to prevent a diagnosis of cervical cancer.
Jo’s Cervical Cancer Trust is the only UK charity dedicated to women and their families affected by cervical cancer and cervical abnormalities. The charitable organisation offers a range of information and support both online and face to face 24 hours a day. Jo's Cervical Cancer Trust also raise awareness about how cervical cancer can be prevented and campaign for best care and treatment. Find out more by clicking here.
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